Advancing the secondary use of health data - insights across Europe and globally

Advancing the secondary use of health data – insights across Europe and globally

How to advance the use of health data in research, development, and innovation to create better health and care for people? The National Initiatives Network invites experts and pioneers in data-driven health to join an online event on 28 November to hear insights and learn from best practices and recent developments in using health and social data in various countries. Metadata, synthetic data and mydata will have a central role in the programme.

November 28, 2022 at 10:30 am - 12:30 pm
Online event: Teams
#healthdata

We don’t need to invent everything ourselves, and we can learn from each other. This has been the core message in the National Initiatives Network on the secondary use of health and social data since 2017, when Sitra established and started coordinating the network. The network focuses on sharing knowledge and up-to-date information on creating the best growth environment for health and social data research, development, and innovation in Europe and globally.

To celebrate the network’s five-year journey, the network invites all experts and pioneers in data-driven health to join an online event on Monday 28 November at 10.30-12.30 CET.

The event highlights network’s core activities. Each country will share what obstacles they have overcome, lessons they have learnt, how ready their countries are to uptake the upcoming European health data space legislation and what they are most excited about in the development of secondary use of health data. It is a great opportunity to hear updates from various countries, also outside of Europe such as Australia, Israel, and New Zealand.

Network’s three subgroups will step on stage with topics on 1) mydata – how EU Data Governance Act supports achieving the goals in the MyData Declaration, 2) metadata – how valuable the well-defined set of metadata is, and 3) synthetic data – what’s the newest new in the synthetic data scene.

Programme

Time (CET)
10.30	National Initiatives Network – five years of collaboration Saara Malkamäki, Specialist, Health data 2030, Sitra
10.35	Fair about data: In the rhythm of MyData Antti ‘Jogi’ Poikola, Leading Specialist, Gaia-X Finland, Sitra MyData Operators as data intermediaries − How EU Data Governance Act supports achieving the goals in the MyData Declaration.
10.50	Meta of metadata Zóltan Lantos, Head of Social Innovation Lab, Health Experience Institute Data Value Chain Study to demonstrate that the data space projected from reality is only valuable resource if the context of all data points is accurately described by well-defined set of metadata.
11.05	Spin me around – what’s new in synthetic data world? Simon Wong, Head of Education and Training & Computational Scientist, Irish Centre for High-End Computing
11.20	Break
11.25	International Lounge Each country shares obstacles to overcome, lessons learnt, EHDS legislation readiness and what they are now excited about.
12.25	Coming up next Saara Malkamäki, Specialist, Health data 2030, Sitra
12.30	Event ends

What is the National Initiatives Network?

The National Initiatives Network on the secondary use of health and social data is a network that gathers experts in data-driven health to discuss how countries are developing their initiatives to better use well-being data for the benefit of us all. The network holds regular online meetings approximately three times a year and has three active subgroups on 1) synthetic data, 2) metadata, 3) fair about data. There are 19 countries, 81 organisations and 130 people in the network.

It is an excellent opportunity to exchange ideas and learn from a group of experts, get relevant and up-to-date information otherwise difficult to find, find new collaboration opportunities, share best practices and tackle challenges together that are common for all countries.

To join the National Initiative Network please contact Saara Malkamäki.