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TEHDAS, the joint action Towards the European Health Data Space, advances more extensive use of health data across Europe. The project supports the European Commission’s aim in creating a harmonised internal market for health data. Our work has provided elements to the European Commission’s legislative proposal on the health data space and will continue to support further work related to the proposal.
We gathered stakeholders from academia, business, public sector and NGOs to the Stakeholder forum on 14 June 2022 in Helsinki, Finland and online.
The forum focused on the current developments of the European Health Data Space. We learned about the TEHDAS results related to barriers and enablers of health data use, data quality and infrastructure as well as citizens’ views on sharing health data. In addition to TEHDAS partners, a broad range of stakeholders shared their views.
The discussion highlighted individuals’ right to their data, trust as an enabler of data sharing and use, the importance of ensuring data quality and the future of the EU’s health policy. A main message of the European health data stakeholders is that to reap the full benefits of wider health data sharing and use, people’s trust and communication on the advantages of data use are needed.
The forum was an official pre-event of HIMSS European Health Conference which took place on 14-16 June 2022. The conference was organised within the framework of the French Presidency of the Council of the European Union.
Read the news item of the forum. Read more about TEHDAS project.
Inquiries: tehdascoordination@sitra.fi.
Programme
9.30-13.00 EEST (Helsinki time) / 9.00-12.00 CEST
Messukeskus Helsinki Expo and Convention centre, Helsinki, Finland & online
| 9.30 EEST |
Doors open & coffee
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| 10.00 EEST (9.00 CEST) |
Welcome words
Jyrki Katainen, President of Sitra & Former Vice-President of the European Commission
Moderators: Elina Drakvik, Specialist, Sitra & Shona Cosgrove, Project Researcher, Sciensano |
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Greeting from the French Presidency of the Council of the European Union
Louisa Stüwe, Leading Specialist, French EU Presidency at Ministry of Health – France
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10.05 (9.05) |
European health data space & TEHDAS overview
Markus Kalliola, Project Director & TEHDAS Coordinator, Sitra
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10.15 (9.15) |
Barriers and enablers of health data use
Introduction to TEHDAS results
Michel Silvestri, Head of Unit, Swedish eHealth Agency Front row comments with stakeholders Jennifer Pougnet, Global Data Policy Strategy Lead, Roche & Stein Olav Skrøvseth, Director, Norwegian Centre for E-health Research Participants’ voice |
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10.35 (9.35) |
Data quality and infrastructure
Introduction to TEHDAS results
Enrique Bernal-Delgado, Senior scientist in Health Services and Policy Research, Institute of Health Sciences in Aragon Front row comments with stakeholders Irene Schluender, Scientific Consultant, TMF Germany & Michael Johansen, Chief Consultant, Medcom Participants’ voice |
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10.55 (9.55) |
Keynote: Data, innovation and the future of European health systems
Nick Fahy, Research Group Director for health and wellbeing, RAND Europe
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11.05 (10.05) |
Citizens’ role in European health data space
Introduction to TEHDAS results
Rosie Richards, Assistant Director, NHS Confederation Front row comments with stakeholders Marc Lange, Secretary General, EHTEL & Laura Lang, Medical Science Manager, Kaiku Health Participants’ voice |
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11.25 (10.25) |
Break
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11.55 (10.55) |
Keynote: Does Europe need a Health Union?
Petra Wilson, Managing Director, Health Connect Partners
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12.05 (11.05) |
Panel discussion: Europe’s strategic autonomy in health data
Moderator: Petra Wilson, Managing Director, Health Connect Partners
Bert Verdonck, Program Manager Health Data Spaces and Gaia-X, Philips Liisa-Maria Voipio-Pulkki, Leading Specialist, Finnish Ministry of Social Affairs and Health Nick Fahy, Research Group Director for health and wellbeing, RAND Europe |
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12.40 (11.40) |
European health data space implementation
Karina Zalite & Licínio Kustra Mano, European Commission, DG SANTE
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12.50 (11.50) |
Closing words by Sitra & the Czech Presidency of the Council of the European Union
Radek Policar, Deputy Minister, Ministry of Health of Czech Republic
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| 13.00 EEST (12.00 CEST) |
Event ends
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